On Air Now Dave Harrington 4:00pm - 8:00pm Email
Now Playing Feel It Still Portugal. The Man Download

HSE Guarantee No Delay In Rollout Of Spinraza Drug After Lengthy Campaign

The Minister for Health, Wicklow TD, Simon Harris says he has been assured that there will be no delay in accessing the drug Spinraza, following a lengthy campaign by parents of those affected.

The HSE’s leadership team has approved access to the drug for children with type 1, 2 and 3 Spinal Muscular Atrophy on an exceptional and individualised basis.

Earlier this year, the HSE said the drug would cost about €600,000 in the first year to treat each of the 25 Irish children with the disease and €380,000 a year thereafter,.

Spinraza is now approved in 26 countries around Europe with just Estonia rejecting it.

More from East Coast FM Wicklow News


  • Ours To Protect

    8:00pm - 8:05pm

  • Ryan O'Neill

    8:05pm - 10:00pm

    Love Songs on the Coast

  • East Coast FM

    10:00pm - 1:00am

    Love Songs on the Coast

Co Wicklow Weather

  • Bray

    Light rain

    High: 13°C | Low: 9°C

  • Wicklow

    Light rain

    High: 14°C | Low: 9°C

  • Arklow

    Sunny intervals

    High: 15°C | Low: 8°C

  • Blessington

    Heavy rain shower

    High: 14°C | Low: 8°C

  • Baltinglass

    Low-level cloud

    High: 15°C | Low: 9°C

Listen Live Listen