Monday, 30 September 2019 - 6 minutes
We have spoken to Les Martin from Wicklow Town a number of times about extending the newborn screening test from 8 to 40 conditions like they do in Italy.
Les has two sons nicknamed 'Cogs and Kiwi' who have a rare genetic condition called MLD.
Senator David Norris is due to bring the legislation before the senate in the coming weeks.
Light rain
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Light rain
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Light rain
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Light rain
High: 11°C | Low: 3°C
Heavy Rain
High: 12°C | Low: 4°C