Monday, 30 September 2019 - 6 minutes
We have spoken to Les Martin from Wicklow Town a number of times about extending the newborn screening test from 8 to 40 conditions like they do in Italy.
Les has two sons nicknamed 'Cogs and Kiwi' who have a rare genetic condition called MLD.
Senator David Norris is due to bring the legislation before the senate in the coming weeks.
Sunny intervals
High: 12°C | Low: 6°C
Sunny intervals
High: 12°C | Low: 5°C
Sunny intervals
High: 13°C | Low: 4°C
Sunny intervals
High: 14°C | Low: 4°C
Sunny intervals
High: 16°C | Low: 4°C